Introduction To The Registry
The North American AED (Antiepileptic Drug) Pregnancy Registry is located at Massachusetts General Hospital in Boston, Massachusetts and is sponsored by AbbVie, Advanz, Greenwich Biosciences, Janssen, Pfizer, Sunovion, UCB, SK Life Sciences, and Zogenix. The Registry is the first North American Registry of its kind encompassing the U.S.A. and Canada and is a philanthropic arm of Harvard Medical School. It began enrolling women in February 1997. Since that time over 13,500 women have enrolled as of February 2021.
For a more detailed description of the creation and history of the Registry, please visit our About the Registry page.
How can you help
Please tell your patients to call the Registry TOLL FREE at 888.233.2334 to enroll in the North American AED (Antiepileptic Drug) Pregnancy Registry. We can only enroll a woman if she personally initiates the call. Providers cannot enroll their patients, but they can tell their patients about the Registry and recommend that they call. The Registry truly depends on the enthusiasm of providers to tell their patients about the Registry and to strongly encourage them to participate. Please remind your patients about enrolling in the Registry each time you see them.
What About HIPAA?
Consistent with HIPAA guidelines, we have established several steps to protect any confidential information obtained. Information on participants is entered into a secure database to which only the research staff have access.
Confidentiality is very important to our participants and we take every precaution to uphold the privacy of each individual.
North American Antiepileptic Drug (AED) Pregnancy Registry
125 Nashua Street | Suite 8438
Boston . Massachusetts 02114
TOLL FREE: 1.888.233.2334